Type B aortic dissection (TBAD) is a life-threatening condition that occurs when a tear in the descending thoracic aortic wall occurs creating a second false channel. Patients with TBAD face dramatically different options for care without strong evidence for the long-term consequences of those options at an individual level. What is absent in the decision-making process in this complex landscape is the patient’s voice. Providing opportunities for patient involvement will help ensure the patient voice is well represented in research related to TBAD.
With initial funding from a Patient-Centered Outcomes Research Institute Engagement Award, the TBAD Collaborative aims to improve the management of and increase quality of life for people impacted by aortic dissection. The Collaborative is building a research infrastructure to facilitate patient-centered outcomes research training, support, and networking among patients with TBAD, vascular surgeons, cardiac surgeons, cardiologists, researchers with expertise in aortic dissection, research consortia dedicated to aortic dissection, industry stakeholders, and patient advocacy groups. The Collaborative will assemble a broad network of stakeholders who are well-informed about type B aortic dissection and patient-centered outcomes research, in order to guide research prioritization and eventual development.
Learn more about the TBAD Collaborative by viewing our introductory webinar (16 minutes). To stay up to date on Collaborative activities, reach out to our team at TBADCollab (at) uw (dot) edu.